wandering the next steps after misdiagnosis and feeling unsafe in healthcare settings

[EternalFlower]

i have trauma from healthcare services

i trust not a single soul, besides for my GP

people are pushing me into public care, public care is pushing me into private, and and everyone claims the NDIS can do everything

NDIS is full of strange workers - luckily i found a  nice and intelligent one

I have tried case management, Spectrum, and seeing a private psych

I don't have BPD but as soon as I mention Spectrum I'm told stock phrases like "you have to stick it out" and "you're in good hands" and offered BPD coping skills

it doesn't seem to matter what my diagnosis is - people seem to want to solve things and push me away rather than hear the reality of what i experience and know.

[Glisten]

@EternalFlower  I don’t know what to say. NDIS does NOT do everything.

Trust your instincts.

Get what is best for you.

big hugs 

[AuntGlow]

Hello @EternalFlower, 

Thank you so much for sharing this with us, I can't imagine how hard this has been for you...not feeling supported, being constantly redirected, and not feeling secure in your care network are more than understandable reasons for feeling how you are. 

Despite this, I am glad to know your GP and NDIS worker are helpful. Can you tell me more about how they have supported you? 

I really hope our community can be a consistent and stable place of peer support for you. We're always here if you need to talk, okay? 💛

[EternalFlower]

thanks @Glisten 

thank u for caring x

[Eden1919]

@EternalFlower  Hi I was also misdiagnosed with BPD when those symptoms were actually because of autism that was ignored and I actually don’t fit the criteria for BPD at all but no one would listen to me except my psychologist anyway I ended up moving states and things have been better with my care team and no one here thinks I have BPD so that is good. I am sorry you have had to go through this I hope things start to get better for you soon. 

[EternalFlower]

Hi @Eden1919 @AuntGlow @Glisten @Sparky79 @Appleblossom 

I have been attempting to question and challenge the public hopsital of where I have got the diagnosis of bpd

The psychiatrist at both spectrum and my consultant in case management said I have a fiff diagnosis

Still, bpd isall over my file

Im pleased to hear @Eden1919 that u got better care interestate

My previous public hopsital was better but I moved house and lost them.

[Eden1919]

@EternalFlower  Hi I am not sure I am familiar with a “fiff” diagnosis so I am not sure what that means but as for BPD it is actually quite often misdiagnosed in women or AFAB people basically because of sexism the only criteria I fit was that I self harmed and that was enough for them to slap the label on me without doing any investigation as to what was causing my issues I really don’t think public hospitals are the best place to get diagnosed they often are short on time to see patients and aren’t very good at investigating root causes because they only look at acute issues. I am not sure how to get it completely off your record but hopefully the hospital starts listening to your chosen treatment team. 

[Appleblossom]

I too, have long term trauma from health services and how that intersects with mental health services. @EternalFlower For me, it has mostly been about witnessing what was done, or not to family members, and only part of my own particular health and mental health.

I have done enuff gratitude for the services, and still appreciate GOOD WORK, as you do too.

However, damage done can require a response in some of us, to be whistle blowers, which is partly how I see myself now. I will always praise and appreciate people who are doing the right thing, to their face and generally, BUT!

The but, is too big. Understatement! I won’t labour my full story here.

For your self, seek out pathways that nourish YOU. It makes sense to distance yourself from the BPD diagnosis. Yes, stigma from that label is abhorrent and destructive. Mainly it shows how the crisis management systems are not effective in the mental health sector. Yes, often making things worse for those, so dubbed. Most of the DSM is BS, but given biblical status, quite at odds with the SCIENTIFIC METHOD.

I am glad you have one decent worker.🦄 They shouldn’t be as rare as unicorns.

The NDIS is a very mixed bag. Yes, a lot of odd people are on the bandwagon. So long as they are doing their job, they can be unique critters like we all are. If their inadequate work on their own issues interferes with their ability to deliver the service they are paid for, that needs to be addressed. Individually and generally; individually, participants should be able to CHOOSE, and not judged if they let go providers. I still need to vent occasionally about the problematic so called providers, who damaged me or my son, and wasted our time and taxpayer funds. I am now using it as a learning experience, to become more proactively assertive. 

Regarding getting satisfaction from hospitals about the BPD diagnosis, I am not sure of your chances. I wish you well with it. I don’t want to tell you what to do, but for us, we are forced to just cop the damage, which includes psychological, reputational, and loss of a $6000 computer, which may well be gracing some unethical staff members home. Hmmm. My trust is zero, now.

Take care, and focus mainly on your wellbeing. 

@Eden1919 @AuntGlow @Glisten 

[EternalFlower]

Hey @Eden1919 sorry typo...meant diff diagnosis 

My diagnosis is complex trauma and im a woman who is articulate so i got bpd coz why else would I be feeling the way I was ? Bpd actually has a diagnostic criteria, which spectrum conformed i didn't have in writing

It has been very unacceptable for people to assume I have bpd because of shallow facts about me 

[EternalFlower]

Hi @Appleblossom i will probably get let down

I just hoped that facts could matter

I sent them about 8 sets of diagnostic facts and tests from diff clinics and drs including public who said I have complex trauma and one from Spectrum stating I don't meet the diagnostic criteria of bpd.

Nb to all mental health workers 

Please never assume anything about someone.

@Eden1919 self harm doesn't mean u have bpd and that's so disappointing 

Correct and accurate treatment is impossible when people take shortcuts and im ready for bpd diagnoses to be done sensitively and thoroughly

I do not feel good when people assume I have bpd without asking me